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No Cure??!
That's right. There's no cure. You have a chronic disease. It may not kill you, but you may wish that it would. (This is actually true, there is a higher rate of suicide among IC patients than would be otherwise normally). All we can do is treat the symptoms. Unfortunately, because every patient is different, not everything works for everyone.

So What Can I Do?
Stress can be a big factor here, so the first thing is to try and relax as much as possible, and to try to be as comfortable as you can. (On a slightly good note here, now you have the perfect excuse to never were panty hose to your job ever again).
The best thing to do is to try and find a good doctor. He or she can try you on a number of drugs and treatments. Eventually you will have to pick and choose among these items and try to find the combination that works best for you.

Things I Have Tried
This is by no means a complete list of items - I will be getting a bigger list here as soon as I can, but here are the things that have worked for me:

  • Elmiron - this is the only drug that has been approved by the FDA for treatment of IC. Unfortunately it can take between 3 and 6 months before seeing any improvement. (I'm on my fourth month now and it may actually be doing something). It is supposed to help coat the bladder and bring down the irritation, giving the bladder a chance to heal.
  • Elavil - this is an anti-depressant, but I'm not taking it for depression. It's supposed help with pain, although we're not sure why. Side effects for me include extreme drowsiness and dry mouth, but my pelvic pain has been improving.
  • Prelief - an over the counter non drug - actually a calcium supplement that is supposed to take the acidity out of foods that may cause flares like soft drinks and tomato sauce. You can buy tablets or a powder to put in your food. I'm not actually sure this does very much for me - some people get just as much relief drinking water spiked with baking soda.
  • CystaQ - this is a new one for me, but I do think it is helping. Again, doctors are not sure exactly why it works, just that some IC patients do experience some relief. This is not an over-the-counter supplement, and it's pretty expensive - about $50 for a one month supply.
  • Physical Therapy - I cannot emphasize enough how much this has helped me. My Uro-Gyn referred me to an excellent therapist who specalizes in women's pelvic floor therapy and it has worked wonders for my pain. She also works on my back as she feels that much of the irritation and pain can be traced to the back muscles.
  • Bladder Hydrodistention - this procedure is what is usually known as the "gold standard" for diagnosing IC. Thankfully they knocked me out for this, because essentially what happens is they stick a camera up your ureathra into your bladder and take some pictures. Then they fill your bladder up with as much as it can hold and go back into it with the camera and take some more pictures. Often times IC patients have pin-point ulcers in their bladders after the distention. Lucky you - you can see my pictures here. Due to the distention, many patients experience some relief for several months afterwards, but subsequent distentions do not help as much.

As I said, this is just a short list for now - I will be adding more to it when I get time.